Medical Update

I've been asked several questions and thought I should probably update this with my current medical situation. I met with my Oncologist last week and confirmed finally that I will not be taking chemo. I can always change my mind but I won't. Because of that decision I also met with Hospice last week and will be meeting with my Hospice nurse in the next couple days to discuss the care I currently need. The nurse that meet with us was excellent and explained to us how when people first hear the word Hospice, people usually jump to thinking they have a week to live, because that's when they got called in the past. But Hospice is really Comfort Care, and the sooner you start after your diagnosis, the better chance they have to comfort your. That can be through medications, massages, hospital beds, medial equipments needed to move around, nurse weekly to your house, etc... The purpose is to  provide comfort care, to the patient, so they can have the quality of life they desire as they leave this world.  Once I start Hospice, hospitals visits

Currently I try to accomplish one activity a day because that's about all I can do. Usually about an hour in length. One activity could be, attending Dallin's cross country race, visiting with friends if it's a visitors day, work on finishing kids scrapbooks etc... It takes a lot of medication to help me do these tasks but hopefully the hospice nurse will help me find a good combination that will work better for me. This minds me of the Brian Regan joke about visiting the ER and saying "8".  (I shared the link below.) I kind feel like the end of this joke. 

I've noticed a lot of change just in the last week. More sleepy (medications add to this), more pain (night time is usually my worst time for pain, so I don't attend things at night), nauseous (this is just constant now, not terrible but always there), decrease in food intake (nothing sounds good because I'm always nauseous), and today for the first time I had a hard time having conversations. I know what I want to say but that's not the words coming out of my mouth. That was pretty frustrating. I'm having a hard time just writing these couple paragraphs. It's taken me an hour to write just this far.  It keeps showing me errors and I don't see it until I read it out loud and then I can't remember how to spell the world, so I ask "siri" just so I can spell it right. When I stand up or lay down I get a big rush of pain in my brain even on pain meds so I don't like change standing up or down.

My best time is usually in the mornings between 9-12 but not every day. As Shad says, "It's a new day" but... Every day is different and there's no explanation why. So, day by day is where we're at. I can't tell you what I'll eat an hour from now just because it's always changing. Same with ped meds. I always take the max amount I can take, but I'm still working mostly with over the counter pain meds. I hate how pain meds make me feel!!! So... enough about me.  Enjoy this funny youtube clip. Laughing, still the best medicine!