Ok, so I've heard lots of complaints that I haven't updated my blog for a couple months. It's only been one month and you wouldn't want to update it if you were me either. Also, make sure you update or refresh your page if you're checking on your phones. I'm going to update this just with bullets because I wear out quickly.
Current Status:
- Body has definitely progressed in slowing down.
- I have not been able to hold down food or liquids for atleast 3 weeks. Has helped me loose 20 pounds but probably not the way I should be doing it.
- So everyday is a guessing game on food or liquids. I eat very little because I'm sure my stomach has shrunk, but I still try and take only specific meds now. There's no rhyme or reason to why some days foods or liquids work better then others but still it's small amounts.
- I rarely leave my bed. I have little to no energy. Just walking from my bed to the kitchen gets me out of breath.
- I went on vacation with my family this last weekend but I was in bed the whole time and very tired. Throwing up was ever present. Not sure why your body keeps trying to throw up when there's nothing coming out. Sorry if that was TMI.
- No medicine we've tried seems to work for the nauseous but we're thinking it's because I have a brain tumor pressing against my brain stem which can cause this reaction. I'm usually not nauseous until after I throwup in the morning. Then I'm good for 1/2 an hour, then nauseous the rest of the day. Not terrible just annoying.
- Pain is also ever present but I can control that pretty good with my meds. I basically hurt every where from my pelvis to tops of my shoulders. My ribs just ache all the time but some spots really hurt. I take methodone and aleve for that.
- I'm only awake about 6-7 hours of the day. I wear out quickly and then sleep 2-4 hours depending on the day.
- I know lots of people have wanted to visit. I just can't get every one in. I've had lots of family in town visiting for obvious reasons but I know we will need to have people come sit with me during the day while Shad's at work soon. Karyn Mcgary and Carol Whitby will be the one's to set up those visits when needed. I know a new food signup and two cleaning days will be showing up soon for next month.
Time to lay down. I'm also having a hard time keeping up with texts. Please don't be offended if I haven't got to yours yet. I woke up this morning with 36 unread texts and who knows how many I haven't answered. We love each of you and are thankful for the many prayers that go out in our behalf.
You are so amazing! I'm so grateful for getting to know you all those years ago when we were VTing companions. You've done the lords work in ways I might never be able to do. We love your family.
ReplyDeleteYou are amazing! The Hatches love you and your family.
ReplyDeleteMust be so hard to type that update. Physically and emotionally. Thanks for sharing how things are. It’s hard to be afar and wonder. So glad you are surrounded by so many angels. Blessings to you and your family. Always praying for you. Love from your cousin, Amber
ReplyDeleteThank you for sharing. I’m so sad you are going through this. I’ll never forget the kind service you gave my mother when she was going through the same thing. -Ketra Pauly Remund
ReplyDeleteI am in awe of your strength. Your children are amazing! Their strength definitely comes from their mom!
ReplyDeleteSweet Rebecca. There are no words to relay the compassion for this journey you are on. I pray for comfort and peace for all of you through it, for you to have better days, and for showers of love to surround you. ❤️🙏
ReplyDeleteMy heart breaks for you and your family. My prayers are with you
ReplyDeleteI just wanted to leave a little message here to tell you how much I love you. Watching your strength of spirit up close while you were here visiting Huntsman and were in our home in the middle of this has left a profound impression on me of your goodness, faith, and powerful love for your family. You've raised some wonderfully amazing children whose lives will always be blessed by your special brand of mothering. I wish we could all take turns taking the pain and challenges away from you. Love, love, love the message of "Joy in the Journey" that you so beautifully exemplify. Hugs and kisses. xoxo - Aunt Amy
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